Remicade vs Crohn’s…Round 1

November 4, 2006 at 9:29 pm ("crohn's disease", Uncategorized)

So I had my first Remicade infusion yesterday.  I was much easier than I thought it would be.  The benadryl made my arm hurt, a weird throbbing pain from my thumb up to my elbow.  It slowly made its way up to my shoulder, and hung out there until it was pushed through.  The Remicade itself was no big deal.

I did feel a little tired afterwards, but nothing more so than usual.  Matt took me home (he stayed with me the ENTIRE time) and mum and I went out to lunch and then to teh St. Louis Weaver’s Guild show/sale.  After wandering around for a bit, I started to get really tired, my stomach started to hirt a little and I was getting a headache.  She took me home and I went to bed for the remainder of the afternoon.

Went to the gym, and probably pushed it a little too hard.  Felt a bit woozy and didn’t feel up to doing cardio after lifting.  The I went to SLAM today w/ mum & Paul (he’s in town for the weekend), and had to sit down a few times.  After we had lunch, I had to come home and lay down for a while.  Didn’t go to sleep, but just needed to rest and relax.  Feeling better now, but now I know I need to take it easy after the infusions.

More on adventures in Remicade land later.

Sean comes home tomorrow.  He and Paul are in town to see Jeff before he goes to Iraq in 2 weeks.

2 Comments

  1. tbechmannfrost said,

    Hi

    How did the Remicade medicin work out for you?

    I ask because my girlfriend is going to need it in the future..

  2. Your Blog Hostess said,

    Hiya. Unfortunately Remicade and I did not not work well together. Don’t get me wrong, it’s an awesome drug and it did a lot of good for me at the beginning. But, I developed drug induced psoriasis, which got realllly nasty.

    If she has a family history of psoriasis or eczema, I highly encourage her to contact a reputable dermatologist for a secondary consultation.

    I have a lot of friends whose lives have been changed for the better as a result of Remicade treatments, and it has been a miracle drug for them. But as with all drugs, some people do not react well to it.

    Keep me posted. Always glad to offer support.

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